Recovery is Long

Although it has been a painful summer, I do have one thing to look forward to--my family and I are visiting Arizona to see Taylor Swift and the Grand Canyon in mid-August.  I am very excited!  I love family vacations, and this is just what I need.  Today, just two days after the surgery and heavy bleeding, I am so sore.  My chest is insanely bruised, and I have to keep constant pressure with a bandage and ice until Monday night.  

The weird thing about pain is, even if you experience a very large amount of it for a long time, it still feels terrible.  I have been in terrible pain for over 6 years, and it still surprises me how much pain my body can produce.  I am hoping after recovery, my pain will subside a bit due to a new jaw.  I have to go back to Denver on Wednesday (for the seventh time this summer) to check up with the doctor.

It's just time to keep on keeping on!

This is my bruised chest two days after surgery 

Arch Bars Gone!

On Friday, I had surgery to remove my Arch Bars (yay!) and get my port scar on my chest revised.  A surgery that was only supposed to take 1 hour took 3.  Although I was under heavy sedation, I kept waking up during the arch bar removal because it was incredibly painful.  It felt like the surgeon was ripping my teeth out.  Afterwards, my mouth and the insides of my cheeks were so raw because of the numbing medicine, but I was thrilled to have those ugly and painful bars out of my mouth.  Seven weeks of arch bars is plenty.

The scar revision took the majority of the surgery time because he was very meticulous when revising.  After we left the doctor, it was already 4 pm, so my dad and I decided to stay another night in Denver.  I lied down on the hotel bed to FaceTime with my mom, and when I sat up to show her my scar it started gushing out blood.  It looked like a crime scene.  I called the emergency line for the doctor and he advised me to keep ice and constant pressure on it until it stopped bleeding.  Finally, after 3 hours of pressure, the bleeding stopped.  This morning (Saturday) I met the surgeon at the office at 7:30 to make sure everything was fine.  He said a blood vessel most likely popped which caused the bleeding.  Unfortunately, I got blood on the hotel bed, and ended up throwing away some of their towels, but at least I am ok!

Physical therapy is still going well, and I am making progress with recovery.  School starts in a month, and I am hoping to be much better by then for my first class (Neuroscience).

Here is a before and after picture of my arch bar removal!

Checkup with Surgeon

Last night, I got back from Denver.  I saw the surgeon, and everything is progressing well, except for my nerve/muscle pain.  I received another injection in my cheek muscles (this time with double the numbing medicine).  So far, it has not helped.

He told me that arch bars wreak havoc on teeth, and I can get them off July 24.  I will have had them for 7 weeks, so it is the perfect timing.  There are spikes on the arch bars that line my gums, and those are killing me!  A week before arch bar removal, I cannot wear any rubber bands at all so that my bite adjusts to its natural position.  The rubber bands make my bite totally even and helps relax my jaw, so it will be an adjustment to not have the bands on.  I am hoping my bite is relatively even!

I will be going under for my arch bar removal, and while I am under, the surgeon is going to fix my scar from my port.  It has a keyloid and it is wide and  ugly, so I am very excited to have a skinny scar on my chest.

I am still on pain killers, but gradually reducing the dosage.  Physical therapy is going well, and I am seeing them twice a week.  I get headaches after appointments, and my neck gets tight, but in the long run, I know it helps!

I have been getting a bit of physical therapy on my jaw, and it is definitely painful and tiring.  There is a lot of hands-on exercises (stretching the muscles, opening and closing, etc), and I can't say it feels too good.  But, I know it will help.

On top of the jaw, I have been having some of my previous stomach issues arise again.  For the past three days, I have not been able to keep food down (even my liquid diet of soups and smoothies), and throwing up is not the best exercise for my jaw!  It is quite painful and the nerves get very agitated.  So, as of now, I am eating very little.

Next week, I am headed back to Denver to see the surgeon to get my belly button stitches removed, and of course see how I am healing.  It's been a journey...

I can't believe surgery was only 3 weeks ago! I still have facial paralysis (my right eyebrow does not move), but the doctor is hopeful movement will return in around 4-9 months.  Pain killers are still my best friend-- I have to take them around the clock to feel comfortable, so I am sleeping the days away.  Summer is not very exciting, but I have gotten out a few times.  It is weird not working and being productive, but it leaves time to study for neuroscience, hang with family, and hopefully get back to 100% (or at least my 100%).  I am experiencing extreme skin sensitivity, which is normal after they cut through all of those nerves and muscle, but it is so painful.  My physical therapists recommends lightly rubbing a tissue on the right side of my face, but even that drives me crazy.  All will take time to heal, but until then, I will persevere!


Here is a picture from my surgery day, just 3 weeks ago!

It's Always Something...

This past weekend, I had to travel back to Denver to see the surgeon because my belly button incision refused to heal.  It was wide open--it was as if I had two belly button!  It was pretty nasty, to be honest, and it was a deep wound.  The surgeon stitched it up, and hopefully it will heal up just fine now.  

I have been having some intense pain in the middle of my cheek.  It is very sharp and even when I press lightly, I twitch and convulse with pain.  Dr. Aragon injected lidocaine and some cortisone in the muscle thinking I was suffering from muscle inflammation.  The injection did not help at all, so that is making me think this is nerve pain.  It is driving me crazy!  It is probably the worst pain since the surgery.  

Overall, recovery is going smoothly.  I am still on pretty soft foods-- smoothies, soup, mashed potatoes.  I am occasionally eating french fries or sucking on soft crackers, but I am really ready to eat a burger or a sandwich!  The arch bars are a pain in my butt, but I am used to them by now.  Right now, it is just time to continue to recover... 

The pain has been pretty bad... I have been on pain killers constantly, and now I am getting a sore throat.  The swelling is not as bad as I thought it would be, but I have some red blotches appearing on my face.  The smoothies, frozen yogurt, and pudding have been going down well, and I am not sick of soft foods just yet.  I have been keeping myself occupied by coloring, watching TV, and sleeping the majority of the day away.  I am still in Denver (I have two appointments with the surgeon next week), and I am so ready to be home.

The x-ray of my new skull!